Category Archives: type 1 diabetes

Now Scotch and Honey I can understand…

It’s October and for those of us with a family member dealing with Type 1 Diabetes that means….flu shots.  Hands up anyone who has heard one of the following:

1,  “I had a flu shot once…first thing I did when I got home was throw up and spent the next week in bed…never again.”

2. “I’ve never had a flu shot and never had the flu…lots of (insert favourite nostrum from ‘fresh orange juice’, ‘whole bulb of garlic smoothie’ to ‘wearing an old sock around the throat’ here) is all you need.

3. “It’s all a plot by the pharmaceutical companies”

4. “What, don’t you know it will give your kid autism?”  (this is frequently mentioned by people who wouldn’t recognize autism spectrum disorder if it stood in their living room juggling chainsaws….)

Of course this isn’t restricted to those of us who happen to be in the ‘chronic disease’ community.  We just deal with it on an annual basis. New mothers also go through the debate when their little bundles of love face that traumatic first round of immunizations.

When my oldest was a cuddly bundle of promise I dragged myself out to mother/babe groups in hopes of finding human companionship. I had coffee with one uber-mom who sized up my daughter and asked if she’d had her polio immunization. On hearing she was up to date on all her shots, I was directed to change her diaper on the bathroom floor instead of the change table. She might throw weakened polio viruses, you see.  That way she could keep the door closed and dettol the room before her little widgums could be accidentally exposed.

She was concerned vaccinating her boy could either kill him or cause him to be somehow less than perfect due to the big pharma conspiracy.  Matter of fact.

Oh. I see. Gee, look at the time–I have to get home before the line up at the laundry rocks down by the river gets too long….

Fast forward 12 years to when my daughters are in school and whooping cough has hospitalized one of their classmates and several others will be kept at home for  months. The school sent home a notice warning of the Pertussis outbreak in the school and to make sure immunizations and boosters are up to date.

Now I am older than dirt. I admit this. But I remember parents in those days were good little sheep who made sure we were all inoculated against anything for which there was a vaccine. Oddly enough, I don’t recall any Pertussis outbreak occurring the entire time I was in school. Or for many years afterwards.

I do recall reading about it in books or seeing it in movies about pioneer life.  A child coughing to the point of gagging, a sheen of fever; the doctor walking out of the room, dejected, closing the door behind him as we briefly glimpse a weeping woman throwing herself onto the bed clutching at her now silent child.

A bit much? Okay, the mortality rate for Pertussis isn’t as high as, say, being hit by a train but it is substantially higher by a factor of 1000 over the mortality rate of complications from the vaccine. Pertussis also leads to life long complications like asthma, COPD and the certain knowledge your parents are total dumb asses. Okay…that’s more like a complication of adolescence but it continues long into adulthood, providing you survive a childhood in their care.

Having a child with Type 1 diabetes cuts out all the well meaning arguments and any doubts you may harbour about the efficacy of this vaccine mumbo-jumbo. The fact of the matter is even a simple flu can wreak havoc on a person with a compromised immune system. The inability to keep food or fluids down isn’t merely inconvenient: it’s a medical emergency to the diabetic.

So, the bottom line here is that this year’s flu vaccine is available and your local health clinic will be announcing times when to get your flu shot.

As for an inoculation against ignorance…that one hasn’t been perfected yet. I recommend a short, sharp smack upside the head.

If you live in BC go here to find your local clinic and hours http://www.health.gov.bc.ca/flu/

Some other interesting links:

A great blog about infectious diseases and protecting your kids: http://blog.pkids.org/

(this entry about pertussis caught my attention)  http://blog.pkids.org/2010/07/

General information about anything medical but careful about looking at some of the pictures…http://www.medicinenet.com/flu_vaccination/article.htm

The Canadian Gov’t’s 2 cents worth http://www.phac-aspc.gc.ca/im/index-eng.php

And for the Americans: http://www.cdc.gov/flu/index.htm

Looking for a face to put on this thing?

Every time someone gives me a “poor you” look and asks, in hushed tones, “how is your daughter doing?” – hesitant, as if expecting bad news…I remember it’s just a matter of education.

Cyclebetes 2010—they’re here at Gyro Park, Victoria to dip the wheels of their bikes in the Pacific Ocean. Yes, it’s cliché but if you’d ridden from Halifax, you’d be pretty damn enthusiastic about this kinda cliché too.  Some of the folk here were part of local relay segments, some did the whole shot. Cyclebetes are people with Type 1 or family members of people with Type 1. As the teams go across the country they visit schools for spin competitions and public education. Fund raising is, of course, a big part of their activity but education is also important. Type 1 and Type 2 need understanding, not pity or judgment.

Sebastien Sasseville is the first person with Type 1 Diabetes to reach the summit of Mount Everest. He warmed up with Killamanjaro and is on his way to being a member of the 7 continent club.  In the meantime, you can go to his website to keep track of his activities ’cause I get out  of breath even trying to list them all. Besides, he is gorgeous…his climbing gear does not do him  justice.

Laura Brandes, My Favourite Number,  is the go to person if you’re reaching out to the young adult community. I feel so old saying that but honestly, I am an old fart and the lights go out when I walk into the room. She’s got the energy and the authority and the perspective. She’s my hero too.

Check out Connected in Motion…these are not people who are waiting for permission to live or sitting quietly while science hunts for a cure – life is out there and they have it by the, ah…throat.

Public/Private

For a teenager everything is private and everything is personal.  It’s part of the self-focus mechanism that get’s them through those years where the world suddenly opens up right underneath them. They go from the comfy world of puppets and nursery rhymes to body hair, kissing and the swelling desire to throttle their parents with no provocation whatsoever.

It’s at this point parents have to climb into S.W.A.T. gear and, from a discreet distance, guide this alien creature who has assumed the form of their beloved baby.

A teen with Type 1 Diabetes  will find herself discussing personal issues with her doctor and parents in the room.  These kids have learned to swallow a lot of pride and be realistic about what is embarrassing.  But still, when sugars are high or they just feel like it,  a simple question can set off a storm of mammoth proportions.

Be easy with them, take a step back and remember you are the adult in this dynamic. Then give them a bit of room…and a lot of respect.

I’m gonna go now and pencil in my eyebrows…I lost them in the great “is that your sock on the couch” explosion of  10 minutes ago…

http://www.youtube.com/watch?v=Ag4kqGr5wAU&feature=related